Here is an update from my friend Cami about her son Calvin. Thank you to those that have been praying with us for this sweet family.
18 anxiety attacks and 25 stomach ulcers later....
What a roller coaster weekend! Calvin got his blood transfusion Saturday evening, thankfully that went flawlessly! He pinked right up . He was doing really well with all his cpap trials Saturday night and Sunday morning, so the plan was to extubate him around 2 pm on Sunday. A little before 1 pm, Calvin let us know he was NOT ready to be extubated yet by not breathing on his own at ALL for about 2 hours, and KIND of breathingon his own for another several hours after that. Overnight he had a few de-sats - but nothing crazy - and he did pretty well during one more trial. His chest x-ray this morning looked good (it has been not so great for the last couple days) and he was really awake, so at 1:30 pm the Dr. said now or never, and pulled his tube.
So far he's been doing well. No major de-sats and no periods where he's forgotten to breathe. He is on a high flow nasal cannula, which means there is basically a windstorm going into his nose reminding him to breathe. Over the next few days we will work on weaning him off of that.
We are not out of the woods yet, but heading in the right direction!!! We are so proud of our little man!!!
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