Here is Cami's latest update-
Calvin update! Thank you all soooo much for your thoughts and prayers! We have seen so many answered prayers and felt so much love!
Calvin seems to be pretty much done withdrawing from the sedatives! It was heartbreaking to see him go through it again, but this time was much better. He didn't have his breathing tube, so we could hold him whenever we wanted, and when he cried we could hear him, and with each cry his lungs for clearer and stronger! So we just rocked him and felt so blessed as he cried and cried.
Each day we slowly weaned him from the high flow oxygen and yesterday we turned it off completely! He has gone 24 hours without any assistance with his breathing! He did desat a few times over night, but recovered quickly with no intervention.
Now he just has to keep doing great, and remember how to eat! He has actually lost weight since we got here almost 3 weeks ago. He was almost 7 lbs and is now a little over 6.5 lbs. He failed a few swallow studies, but seems to be improving. He just likes taking his time. We are doing exactly what we did in the NICU 2 months ago- feeding and growing
But we can be patient- we have learned how to do that! We are just so happy Calvin decided to stick around and feel so blessed and so grateful for every second we have with him!
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