Spina Bifida Clinic

   On Friday we got a call early in the morning that they had room for us to come to the Spina Bifida Clinic. Our appointment wasn't until May 9th, so it was nice to get in earlier. At the Clinic you are able to see a lot of Drs. in a short time. It's like them coming to you, instead of you going to all of their different offices. We only saw 4 out of the 10 Drs. We really wanted to see the Neurosurgeons and the Urologist. But we were able to see the Physical Therapist and the Nutritionist also. The Neurosurgeons said that Cole's head and back were looking great. They poked at his feet and they responded, they felt that was wonderful. They want to see us back in 3 months, unless we feel there is a reason to be seen. The Urologist talked to us about Cole's bladder/ bowels. Everything is looking good so far. They will do a bladder pressure test on him when he is about 14 weeks old, to see how his bladder is really working. Cathing him so far everything seems as if he is able to empty his bladder fine. The day we left the hospital the Dr. found that he has a hernia. The Urologist is the on that would fix that. He would like to do the surgery in the next week or so, before it become a problem. The Physical Therapist said that Cole's legs looked promising. His left leg is weaker than is right. But all the muscle seem to be moving.  He said that he doesn't like to do braces or anything to assist until they are 2-3 yrs old. He thinks they need sometime to try and build as much muscle as they can before we step into help. The Nutritionist said that it is great that Cole is breastfeeding and to keep it up!