Friday, January 23, 2015
Spina Bifida Clinic Day!
Today we went to SB Clinic. Before we headed over there we went to Imaging and Cole had a fast MRI done. Which was fast, because Cole was such a good little boy. The man that was helping us said that it was the easiest fast MRI that he has every done. I was just excited that they didn't have to poke him or anything like that. They just wrapped him up tight and put ear plugs in his ears. He was in the machine for about 3 minutes and then we where done.
We then headed over to the Clinic. We met with a lot of people today. We talked with the PT, Mike. I sure liked him. He gave us new ideas for helping Cole learn to and want to roll over from his back to his tummy. He also talked to us about Cole needing more therapy. He felt with the muscle that he see that Cole has he should be doing more. He said that it could be his head that is holding him back. So to make sure it isn't his head, let's ask for more therapy and then check back in 3 months and see how it's going.
Then the Nutritionist came in. She talked to us about giving Cole some foods that have iron in them. She was the one that told us that we should feed him meat baby food. So I wasn't too excited about talking with her at first. But she gave us some great ideas and I do believe she did tell us before to mix the meat with another food to cover up the meat taste. We tried salmon tonight and I'm excited to try eggs tomorrow morning. I think he will love them.
Then the Neurosurgeon came in to talk about Cole's MRI. He said that everything look good! He even measured and said that Cole's ventricles are smaller then last MRI. He still felt that we needed to watch him, but for sure we didn't need intervention right now. So happy for the good news!
Then the Nurse came in. She just asked a lot of questions. I'm not really sure why she needed to come in. But I guess we will be getting a bill from her too.
Then Paula Peterson came in. She is in charge of the SB Clinic. She wanted to make sure we were up to date on bladder and bowel test and issues. Our next test for Cole's bladder will be in the summer. Because he did so well on the last test we only have to come in once a year.
Then the OT came in. She asked a lot of questions too. She felt like he was falling behind too in some areas. She felt like we also should ask for speech therapy to come out too. So as soon as we were driving home I sent a text to our PT that comes to our home and asked her about more therapy. She said that the next time she comes she will bring a OT and speech therapist with her and we can make plans for Cole's future therapy.
After we were done, we met up with our little buddy Emma. If you remember we met Emma's mom and dad while Cole was in the NICU. Ariel was on hospital bed rest so I came and visited her while I was there. Then when Cole had his hernia operation, I got to go and visit Emma in the NICU.
We had a great visit and it was so fun to see little Emma and her parents. All in all it was a great SB Clinic Day!
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