Friday, January 23, 2015

Spina Bifida Clinic Day!




Today we went to SB Clinic. Before we headed over there we went to Imaging and Cole had a fast MRI done. Which was fast, because Cole was such a good little boy. The man that was helping us said that it was the easiest fast MRI that he has every done. I was just excited that they didn't have to poke him or anything like that. They just wrapped him up tight and put ear plugs in his ears. He was in the machine for about 3 minutes and then we where done.
     We then headed over to the Clinic. We met with a lot of people today. We talked with the PT, Mike. I sure liked him. He gave us new ideas for helping Cole learn to and want to roll over from his back to his tummy. He also talked to us about Cole needing more therapy. He felt with the muscle that he see that Cole has he should be doing more. He said that it could be his head that is holding him back. So to make sure it isn't his head, let's ask for more therapy and then check back in 3 months and see how it's going.
     Then the Nutritionist came in. She talked to us about giving Cole some foods that have iron in them. She was the one that told us that we should feed him meat baby food. So I wasn't too excited about talking with her at first. But she gave us some great ideas and I do believe she did tell us before to mix the meat with another food to cover up the meat taste. We tried salmon tonight and  I'm excited to try eggs tomorrow morning. I think he will love them.
    Then the Neurosurgeon came in to talk about Cole's MRI. He said that everything look good! He even measured and said that Cole's ventricles are smaller then last MRI. He still felt that we needed to watch him, but for sure we didn't need intervention right now. So happy for the good news!
    Then the Nurse came in. She just asked a lot of questions. I'm not really sure why she needed to come in. But I guess we will be getting a bill from her too.
    Then Paula Peterson came in. She is in charge of the SB Clinic. She wanted to make sure we were up to date on bladder and bowel test and issues. Our next test for Cole's bladder will be in the summer. Because he did so well on the last test we only have to come in once a year.
    Then the OT came in. She asked a lot of questions too. She felt like he was falling behind too in some areas. She felt like we also should ask for speech therapy to come out too.  So as soon as we were driving home I sent a text to our PT that comes to our home and asked her about more therapy. She said that the next time she comes she will bring a OT and speech therapist with her and we can make plans for Cole's future therapy.
    After we were done, we met up with our little buddy Emma. If you remember we met Emma's mom and dad while Cole was in the NICU. Ariel was on hospital bed rest so I came and visited her while I was there. Then when Cole had his hernia operation, I got to go and visit Emma in the NICU.

We had a great visit and it was so fun to see little Emma and her parents. All in all it was a great SB Clinic Day!


Monday, January 19, 2015

Saturday, January 17, 2015

January

Trying new foods!

Cole has been so good about trying new foods, as long as he can feed himself.

Spagetti

Gram crackers
Green beans
Vanilla Wafers

Gabe is so excited that Cole is getting big enough to start playing with him. Here is their hunt that they played in all morning. Love these two buddies.


We celebrated Mark and my brother Chris birthdays at my sister's house. My sister sure knows how to throw a party!!

Eric was so excited to hold Cole.


This is Cole doing food therapy. Ever since the Beef and Beef Gravy, Cole will not eat baby food. So we have an OT come and see if he could give us some ideas. He wants us to let Cole play with the food and really enjoy it. Which I think he did. We decided that it's not a texture thing it's more of a trust thing. So hopefully he will start trusting us again.


Wednesday, January 14, 2015

Athena's Butt-day!

Happy 1st Butt-day to this beautiful girl!!!



We have been so blessed to have Athena and Heidi by our side the last year.

Here is Heidi's post-
One year ago, this beautiful back-side made it's debut to the world. Her lesion was closed by an amazing team during fetal surgery...then she was tucked safely back in my womb to grow stronger until she was ready to be born! Athena showed us her strength that day and every day since. We could not be more proud.

Fetal surgery was the scariest...and most peaceful decision we've ever made. We could not have done it without the love and support of so many. Thank you ALL for being on this journey with us. We are forever humbled and grateful for you all heart emoticon

Friday, January 9, 2015

Catch up!

We have been enjoying the snow. Luke made this snowman all by himself! 



We celebrated Mark's birthday! We are so grateful to have him as our Dad!



Cole's hair is getting long enough to do some pretty cool hair dos!


Side view so you can really appreciate it. I think it kind of makes his head look even bigger so I don't think he will wear it like that ever often. But it was fun to try it out.





Saturday, January 3, 2015

Happy Fetal Surgery Day!

Happy Fetal Surgery Day!

 One year ago today was one of the most scariest days of my whole life. I pretty much closed my eyes and stepped into the unknown. I had courage to do it because I felt the Lord by my side. We have seen miracles because of the surgery that Cole had done while still inside my tummy.With that all being said we couldn't have done it without the support of friends and family. We are so grateful for their love. I can't wait to see what the future hold for our sweet boy. He truly is a gift from God.


 All my spina bifida friends would call today Cole's Butt day. Because in most SB Fetal Surgery's the babies butt are showing during the surgery. But because Cole's legion was so high, his would be a back day. Which doesn't sound as cool. So we are sticking with Fetal Surgery day! So HAPPY FETAL SURGERY DAY TO YOU ALL!



Cole and I threw a party for the family. We wanted them to know how grateful we are for all that they have sacrificed in the last year. Lucky to have such an amazing family